Wednesday, August 01, 2007

Where's Molly? Where are the others?

From CNN.com:
Families get help finding loved ones lost in institutions

The story

One day in 1957, when Jeff Daly was 6 years old, his little sister Molly, disappeared.

Every night at dinner, he would ask his parents the same question, "Where's Molly?"

Every night, he says, he received the same answer: "Stop asking about Molly."

Decades later, Daly learned that his parents had sent Molly to a state institution nine days before her third birthday. Nearly 50 years later, Daly found his sister and made a documentary about his search.

"Since the movie, literally hundreds of people have come up to us and said, 'I had a [relative] that I remember my family talking about that was sent away. Do you know how we can find out about that person?'" says Daly.


Wheresmolly.com

The CNN. com website has several video clips that you can watch if you computer allows you do to do that.

There's a timeline that explains that in 1967 about 195,000 people, half of whom were children were institutionalized for being disabled, many of them would have been diagnosable as autistic by today's standards. Many of the were treated brutally and died in those institutions of the actions of drugs and of neglect and disease.

One of the most horrific statements made in one of the video clips was that people in corporate American just did not have retarded kids, so they sent them away and pretended that they didn't. Another statement was that no one wanted to be known as the mother of a "retard." These were the peers of Molly's parents. The unmitigated gall of such thinking. The hardheartedness. Who are these people who thought they were so special? How sad that they ever got caught up in the whole corporate rat race and sold their humanity to it. To give away a child--a baby. Handing over a baby for forever would be most women's worst nightmare, most father's too.

The parents of autistic kids today who are demanding a cure for their autistic children (not all parents are like this) are themselves children of this very generation of people who would callously send their children away to be warehoused and pretend they did not exist any more. It's just what was done. So, there's nothing there now in the culture, no inherited way to deal with the shame of having a autism spectrum child, and these days there aren't so many people who will participate in such a sham as to pretend a disabled child who lived with the family for three years from birth on, did not exist.

The insulting and self-righteous of the parents demanding a cure, Mark Blaxill of SAFE MINDS, for one, will say things like, "There's no one in my family who is autistic. No cousins, no relatives at all. I never heard of any autistic people in my neighborhood and none of my friends can remember any, either." The utterly repulsive and disingenuous David Kirby says the very same thing.

Therefore, there's been an autism epidemic, right? Wrong. But nice try.

How's that for an effective revision of history?

Wipe out a people,
throw away their photographs and their personal things,
refuse to talk about them so no one knows they existed
and then lots more people especially younger ones will be able to say
with all honesty that they never heard of the disappeared ones
and deny that they ever did exist.


And when people say that these disappeared ones did so exist, just mock them and call them liars, as is common practice among the mercury parent activists.

These next quotes are from Kay Olson, guest blogging on CNN.com She has The Gimp Parade blog:
...
And, you know, diagnosing developmental differences is one thing - tricky by itself - but determining how differences affect potential is even trickier. The very act of deciding a person has limited potential can limit their opportunities. I know a few people whose abilities were radically underestimated because of developmental diagnoses, and I've read of or conversed online with dozens of other disabled people whose lives have been seriously affected by judgments - faulty judgments - about their worth and ability.
...
I think the main thing that nondisabled people don't necessarily know or understand is that developmentally disabled people are not this separate category of human beings. People tend to think, "We can do things. They cannot." And there's no line like that dividing all of us. There are shades of ability, varying talents that surface in surprising places. This is true for physical disabilities as well. Most of us, in the course of our lives, discover we have abilities or affinities for some things and lack talent elsewhere, so this idea that a certain class of people lack value or the ability to contribute inevitably underestimates and wastes a lot of human potential.
If you want to know about how kids were treated in the U.K. it wasn't much different. (site contains some artist's nude photos, probably safe for work, but possibly not). Alison Lapper:

QEB, the building where I lived, at least the first one I can remember, had two parts; an inner section and an outer section. The inner was warm and had central heating. It was where the more delicate types like the Spina Bifidas lived. And for us toughies, as we were called, there was the outer part which didn’t have heating and was freezing cold in winter. Us toughies in the outer section were accommodated in large dormitories, twenty or thirty to a room, with our metal cots laid out in rows - cot, locker; cot, locker; cot, locker - great big tall cots with great big tall sides, so it was like being in a cage. I wasn’t able to get out on my own. Somebody had to unlatch the side and get me out.

At night they used to put me inside my cot with the high sides, never in any underwear for some reason, just a little nightie, and in the morning they’d wake us all at six o’clock , while it was still dark outside. The nurse would sweep through the dormitory in her starched uniform with her assistants tagging along behind her and making sure that everyone woke up.

I had to wait my turn for the bathroom – there were thirty of us – so a nurse picked me up out of my bed and plonked me down on the floor I remember the freezing the shock as my bare skin came up flat against the hard cold concrete. All around me cockroaches were running about, just a few, but I didn’t mind them as much as feeling my bottom and legs slowly going numb with the cold. Eventually someone would get me and take me to the bathroom to wash my face and clean my teeth. And then it was off to breakfast which we all took together in a huge refectory room.
Alison Lapper was born without normal arms and legs. An artist did a huge sculpture of her, pregnant, nude. That sculpture was on display
in Trafalgar square in London for a year.

More here Mark Blaxill and the Hidden Horde and Dear Jon Movie.


CNN did a wonderful thing by bringing attention to this issue of hundreds of thousands of people who were disappeared this way in the U.S. Molly's brother did a wonderful thing by seeking out his little sister after all those years.


Autism Diva
familial

11 Comments:

Blogger Matt said...

I have been somewhat obsesssed with the old institutions lately.

It is obvious that this was the place you put your kid if you could for most parents of kids with conditions like autism, mental retardation, CP, etc. Otherwise, the kid was just hidden for the most part.

Reading through old newspaper articles gives an interesting view of how things were handled in the past.

A couple:

NY Times, June 4 1972 had an article about the "attic children". "...so called because they have been kept hidden..."

NY Times Feb 7, 1950 describes Childhood Schizophrenia (autsim) treatment. They discuss a child whose parents "refused to put him in an institution". The parents "refused". The insitution was the default, the parents had to "refuse" it.

A story from the 1930's shows Leo Kanner rescuing people from slavery. These people (moslty girls) were removed from their institutions by crooked lawyers. The lawyers came up with writs of Habeas Corpus, and the insitutions let the girls out--to people who had no contact with them previously. They were basically snatched away to become cheap servants in rich Baltimore homes. They got away with this for years and years--because no one was checking on their relatives in the institution!

Matt

6:11 PM  
Blogger Domestic Goddess said...

This is such a disturbing issue to me. When I was going through College for Special Education (which has now come in handy) I watched a documentary about the horrific conditions in a local institution in Pennsylvania that was exposed on a local news channel. The funny thing is that the place wasn't shut down until nearly twenty years later, in the eighties. A total disgrace. I cannot even fathom handing my child, the child that grew in my womb for nine months, over to complete strangers and never knowing what happened to them. I cannot imagine the grief I would feel.
The sad thing is that although institutions as such don't exist as much (but some are still there) there are now "residential facilities" for our children. The Therapist that has been working with my son since he was three years old (he is nearly five) has also been working at a residential placement with a boy the same age. His parents never come to see him. He was placed there at three. His family never takes him home. I cannot imagine it for a second. I know that there are circumstances I am not aware of, but the one thing I do know is that the family ASKED for the placement. They are well-off, there was no abuse, there was no CYS involved. It was voluntary.
People can stop being embarassed and afraid. It isn't so bad having autistic children! In fact, I feel my life is better for it. If I did not have these children I wonder if I'D be the shallow on on the other side of the fence, pitying the poor mom at the playground who is smiling and pushing her shrieking, happy child on the swings...instead I AM That mom, the happy one, whose life is blessed beyond measure.

This is such an alarming thing. Much thanks for bringing it to light.

5:52 AM  
Blogger Persephone said...

Our current president lost his sister while both were quite young. His parents never told him she was dying, and after she died it was never really discussed.

This is believed to have contributed to much of his clowny, jokey, poor behavior, and possibly to his drug addictions and drinking.

How can it feel to suddenly find a sibling gone, and your parents and older relatives act as if the child never existed?

While I can certainly understand the placement of some children in group settings, to act as if the child never existed is completely wrong.

10:35 AM  
Blogger Another Autism Mom said...

I cried just by reading one of the reviews of Where's Molly. I can't wait to watch the movie.

I knew a very rich family that put a child away in an institution in the 70's; the girl had some kind of mental disability but I never knew if it was MR, autism or DS. I couldn't tell if they were hiding the girl because they were ashamed, or because they didn't want to deal with the difficulty of raising a child with special needs. I was just a kid, but I remember thinking how cruel those parents were for abandoning their child. My friends in the neighborhood also thought the mother was a witch for doing that.

11:02 AM  
Blogger abfh said...

Given what we now know about genetics, it's likely that many of the parents were autistic themselves, and somewhat naive, and trusted the doctors who told them that the child would be better off in an institution with special care.

No doubt some of the parents were callous corporate climbers, but I wouldn't go as far as to say all, or even most, of them were.

I'd say the doctors are the ones who deserve the bulk of the blame.

5:05 PM  
Blogger Autism Diva said...

Thank you for all the comments.

ABFH, kids of poor parents even if they were normal kids might end up in such a place as Willowbrook, so yeah, they weren't all rich people's kids. But Autism Diva is partly influenced by a conversation she had with a woman who worked with her mother running a residential home, today's answer to the big insitutions (they are small institutions according to people who ought to know, and from what I have seen personally.) The woman was waiting in a doctors office while Autism Diva was waiting for a friend to be seen by a doctor.

The woman who worked at a residential home said that most of the kids had rich parents and that they usually didn't visit them.

She said that there was a young man with CP who was pretty seriously disabled. I think he couldn't speak. Anyway, he was on all kinds of meds. His father was an MD and could easily have afforded to care for the boy in his own home (or built the kid his own home) but the tax payers were supporting this young man entirely).

The parents came and took the young man home and the young man died.

It looked to this woman who had cared for the young man that the dad, the doctor had killed the boy with an overdose, deliberately.

Believe it, that if Autism Diva could figure out who the Sacramento doctor was who might have done this, she'd turn his name over to the police.

But the real story, is that the poor people kept their kids no matter what and it seemed that the rich people, now, hand them over to the state.

When Autism Diva saw the people in one residential home, it seemed like any one of them could be cared for at home by his or her parents. They weren't heinous disruptive monsters, they were Down syndrome and Frag X people. Nice people! Maybe some of them had parents who had died or gotten too old, but I doubt that explained all of their circumstances.

5:24 PM  
Blogger Chris said...

There's an anecdote in Annie's Coming Out (see http://www.members.optusnet.com.au/~anne.mcdonald/Anne_files/AnneHome.html) where someone from the institution has to ring home and tell them that their son has died. "No, there must be some mistake... we don't have a son..."
The nurse checks it, rings back, "I'm terribly sorry, but are you quite sure? Ten years old, name of Alexander?"
"Oh, yes. I'd quite forgotten..."
And horrible as it sounds, it's made more understandable by the fact that everybody told the parents to forget them. The institutions discouraged visiting as much as they could. The parents were supposed to get on with their lives and stop fussing.
There's a really appalling movie from the sixties that has exactly this as a major plot point - the climax comes when Judy Garland learns not to bother the parents;
"A Child Is Waiting
United Artists, 1963 (BW, 104 minutes)
Jean Hansen is wanting to find some meaning in her life, so she applies for the position of music teacher at a state institution for mentally retarded children. Once hired, she finds herself on Dr. Clark's staff, though she is not enthusiastic about his methods. She becomes emotionally involved with one of the children, a borderline case (Reuben Widdicombe).
When Reuben stubbornly refuses to follow orders, Jean defies Clark by sending for Reuben's parents. Mrs. Widdicombe (Gena Rowlands) agrees with the doctor and decides not to see the boy. But as she is leaving the institution Reuben catches sight of her and chases her departing car. Emotionally upset about the incident, the boy runs away. When he is returned to the school the next morning, Jean, realizing her mistake, offers to resign.
Clark suggests that she remain on and continue her preparations for a Thanksgiving show in which all the children will perform. On the day of the show Reuben's father (Steven Hill) comes to transfer his son to a private school [because he's annoyed that the mother was bothered]. When he hears Reuben haltingly recite a poem and then respond to the audience's applause, he better understands his son's desperate need to achieve something for himself.

It's like Annie's Coming Out (in the US Test of Love)with all the signs switched from positive to negative, and vice versa; institution good, troublemaker bad.

To a large extent, yes, severely autistic people didn't show up so conspicuously previously because they were held behind ten-foot walls topped by broken glass.

Oh, and Matt, that Kanner story - do you have a reference? I'm interested in the Habeas Corpus side of the thing; that's how Anne eventually got out. Though I have to say that as a cheap servant she's been a total bust.

7:35 PM  
Blogger Angela said...

It is good that some things have changed in the world. People don’t know how to treat people who are different from themselves with respect because they are a human being too. It is better today, but the world still needs work.

9:50 PM  
Blogger Persephone said...

Off-topic, but I just saw this:

http://www.wndu.com/news/headlines/8856377.html

3:50 PM  
Blogger kristina said...

There is some other "famous person" (some others) who, like Arthur Miller, had a disabled child and institutionalized them when the child was very young--am trying to remember.

A great society we are----not.

10:44 PM  
Blogger Lois said...

That "Where is Molly" site just made me cry. How incredibly sad and warped.

3:42 PM  

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