Where the money goes
As was posted on the EoHarm Yahoo! Group by someone, possibly from Oregon, calling himself "autisminsider," Autism Speaks filed a form 990 with the Internal Revenue Service to show what money they brought in and where the millions they spent went, that way they can claim a non-profit status and not pay taxes in the same way an individual with this kind of wherewithall would.
Page 18 shows that they lost $84,749 on the May 8th fund-loser "New Decade for Autism" which was the big expensive party they threw where they showed off the short version of the dreadful, "Autism Every Day" video. This photo is from that big ol' fancy party that turned out not to raise a penny at all, at least not that night. That's Tony Bennett, the guy with the hair next to Suzanne Wright.Page 48 has a statement that sounds like Bob Wright is paying $206,000 in rent per year to another entity he is the chairman of. That's interesting.
Page 10 shows that they paid $57,317 to Platinum Jet for the transportation for entertainers! If they'd thought about it they probably could have got John Travolta to use one of his private jets to go fetch the "entertainers," since Travolta has an autistic son, folks say. Someone would still have to have paid for all that air polluting jet fuel that was burned in transporting those entertainers, but that would still probably have been less than $57,317.
For some reason gramma Wright's head always looks bigger than everyone else's. That's not the kind of thing one would point to normally except for the putative link between head size and autism, and that autism-running-in-families thing.Over at Autism Society of America, it is said that they are panicking because of all the funds that are going to Autism Speaks and are not going to ASA.
So sad, really.
So ASA is working hard, perhaps scrambling is a better word, to reposition itself in the market. Look out ASA, Autism Speaks is pretty efficient at putting smaller orgs out of business or swallowing them whole. It looks like one of ASA's new strategies is to brand themselves as the pro-quackery organization. They just added the head of DAN!/ARI, Stephen Edelson (that's the one in Oregon, not the one who coulda killed some autistic kids by trying to cook the toxins out of them in a sauna, among other horrible things) and a they added a PhD ABA therapist who works with Andrew Wakefield to their board, it's not like it wasn't bad before with a mercury-vaccine-injury lawyer on their board in the person of Jeff Sell, esq. Anyway, now ASA will be more attractive to the mercury/biomed parents. As it is, Autism Speaks has a member of the CDC on it's scientific advisory board, even though AS also has Sallie Bernard on a board, and she's about as pro-quackery as they come, she's not as obviously pro-quack as Edelson is.
You can be sure that Autism Diva doesn't have the dough to hire a private jet or even to hire a stretch volkswagon and she doesn't know any celebrities. Though she has met the president of ASA, Lee Grossman. Autism Diva has positioned her tiny little blog against the insanity of the faux "autism epidemic" and against quackery because it wastes parents' money and energy, and puts some children at risk for dangerous experimentation. It's too bad that the big autism organizaitons refuse to do the same.
Autism Diva
pecuniae obediunt omnia
Labels: autism society of america, Autism Speaks, organizations






18 Comments:
Now, I'm no accountant or lawyer, but...
Looking over their rap sheet, this is looking a lot more like an autism industry lobby than a private charity.
And considering the present state of "wisdom" in the autism industry, I can scarcely imagine anything more intrinsically and insidiously dangerous to our quality of life.
Now, I've long held these compulsive exploiters in low regard, but I was never sincerely frightened by them...
Until today.
:-(
I saw that letter on my (usually VERY pro biomed) local autism list right before seeing it posted on the hub.
It would be tempting to sit back and watch the "super quacks" revolt against the "totally misguided but only half quacks" super group that is AS. But as they do have such a large (misguided) voice that represents itself as the voice of autism, it is important to also take them to task from all sides.
Joe
p.s. Love that stretch VW!
Thanks for you comments. :-)
It's so interesting to see a non-profit that owns stock in corporations, Autism Diva had never seen that before. One of the companies Autism Speaks held stock in in 2006 was Pepsico, makers of Dortios. Elsewhere, Haroldblog noted that when his (autistic) son started eating Doritos (tm) that his son made huge developmental strides.
Coincidence? We think not!
Yo Diva,
I saw that post about the Dorritos and was tempted to offer our own story there. We had my son off dairy for a while (he got mild rashes sometimes). He started eating some Pepperidge Farm Goldfish (cheddar!)...two weeks later, Bam, he starts talking real words.
(see how I carefully ignored the 6 months of speech therapy?)
So, I just need a way to disguise the goldfish so I can sell bags of them for $100 each.
Matt
You're not correlating big head-ness, or hair-ness, to anything, now.....
John Travolta CANNOT have a son who is autistic. It's against his religion.
Love the stretch VW too!
Interesting, somewhat worrying, post - thanks.
One point. Autism Diva says that "It's so interesting to see a non-profit that owns stock in corporations, Autism Diva had never seen that before."
Here in the UK, at least, it's not uncommon: if a charity or non-profit has cash reserves, trustees/board members generally try to invest them for the best combination of return and risk (most will also try to take ethical issues into account). This sometimes means investing in shares.
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The latest question answered on "The Straight Dope" is the one about mercury in thimerosal and its link to autism:
http://www.straightdope.com/columns/070608.html
Cecil, as usual, comes done on the side of sanity.
At IMFAR, Autism Speaks board member Jon Shestack made a dramatic speech about the blood, sweat, and tears of desperate parents raising pennies and dollars for autism research--research funded by Autism Speaks which will save the lives of their terribly sick autistic children.
Then Mr Shestack scolded us researchers (he probably gave us really tough and piercing looks, but I was safely in the corner staring at a ceiling light) to never, ever--how dare we!--waste a penny of this heartbreakingly hard-earned money on anything but research that will save children from autism, right now.
Given Autism Speaks' lavish spending habits, I guess that was irony or something.
Interesting post. Thanks for all you do.
This post has been removed by a blog administrator.
sakthi posted this (plus a spammer's link, Autism Diva removed the link)
Excellent article,I'm really sad to know that the people are misusing the fund which is raised for the cause of "Autism"..There are plenty of work have to be done about Autism child's,in most of the countries they not even aware what is autism is.Don't spoil the money which is raised for good cause,if you do so next time you not even get single penny...
"John Travolta CANNOT have a son who is autistic. "
The condition isn't against his religion. Certain treatments are.
Take a look at the "Joey Travolta Film Camp"
http://www.php.com/include/events/eventdetail.php?ID=4903
They are doing some good, it appears.
Matt
You crack me up when you talk about Ms. Wright's head...
I always remember how my Mom used to say that my Dad and Grandmother had big heads and it was hard to find a hat that fit them. I never noticed that, I always thought my father was so handsome, but then I realize that my Dad's side of the family carries the autism traits, and my son seems to have inherited both the big-headness and good looks from them.
Abe HAS to be the Best in disguise. These guys on the AS board are even making ME sick...
I wonder if they served Mojito.
Autism Diva - families need support and Autism Speaks is raising awareness which will translate into dollars for support and treatment. Epidemic or not, autism is hard to handle. Families feel that they can no longer go out in public; they feel incompetent and overwhelmed - and when you are up all night with your child who can't stop flapping and giggling - it wears you down and can break you. That video - while demoralizing to some of those in it and could have omitted a few scenes and comments and made the same impact - has helped wake people up - HELP! We are drowning. I love my child and appreciate his uniqueness but struggle every day - a struggle that I know I will be working through the rest of my life. He is non-verbal and has severe feeding issues. When I decide I won't go into his room at night as he bangs and giggles - the next morning - I won't describe the scene but suffice to say - it is unsettling. Maybe I am not as strong as you are or others who have lived through this. I am serious. I can barely get through the days. Autism Speaks has helped me know I am not alone - that others are as desperate as I am. And hopefully, the result will be more research dollars dedicated to understanding autism and resources for families like mine. And some understanding of the depth of emotion I go through on a daily basis. And I LOVE my son. If I could wave a magic wand - he would still be my son - autism and all. I would just have better coping skills, more support, and more understanding from the community. That is what Autism Speaks is supposed to stand for. Of course the organization is flawed - but what organization or person is not? I know I sound like a true believer of AS - I am not. I just don't think they are harming anything. (Except maybe Allison's daughter was quite humilated - with that exception- I will give you that!).
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