Wednesday, February 21, 2007

Autism on CNN and NPR

Amanda Baggs of the Ballastexistenz blog and autistics.org (to name two places you can find her essays and discussions), is going to be on CNN this evening on the program 360º with Anderson Cooper.

(Edit: There are two videos here, look for the links on the left that say, "Amanda's world, Part 1," and "Part 2") They seem to be the first and second half of what was broadcast on CNN. There is supposed to be more tonight.)

The way CNN and Dr. Sanjay Gupta have represented their interview with Amanda Baggs, so far, has been peppered with clichés and there is some real bias in the way they discuss her, as in, there are things they just don't get and so those things are represented in a biased way (not because they feel any ill-will toward her, they are just clueless, as most people are about the way Amanda Baggs interacts with the world and about how she sees herself). Ms. Baggs was given a page on the CNN website to speak for herself by way of an essay, and another page where people can write questions to her about autism, thank goodness, that should help keep the misunderstandings down a bit, though answering the emails might be pretty exhausting.

It's a bit of an exaggeration, but it seems from Autism Diva's viewpoint, that it's like the CNN folks have discovered a new species of animal that can talk. Or maybe like discovering that a mouse or squirrel could talk about Shakespeare and Reaganomics and a the relative merits of Thai versus Japanese food. Not that Ms. Baggs is the first or only person like herself to use an alternative way to communicate. It's just that CNN never chose to inteview one before, or if they did, they forgot about it. One thing about Ms. Baggs is that she's one of the few alternative communication using autistic people who can not only discuss literature and cooking, but also is a recognized expert on disability rights (not just autism).

Autism Diva can not speak for Amanda Baggs, but it would appear that this whole CNN interview thing has been, and will be, very stressful for her. (edit: Ms. Baggs explains) The things said on the CNN report will no doubt lead to misunderstandings, misunderstandings that Ms. Baggs will spend weeks untangling, but Autism Diva has seen Ms. Baggs deal with people who don't understand (Autism Diva has been one of them), so long as the person Ms. Baggs is communicating with has an open mind and a willingness to learn, real headway can be made in ironing out the misunderstandings.

On a side note: It would appear that Ms. Baggs is being attacked by two or three (possibly psychotic) people who are jealous of her relative fame (not something Ms. Baggs would seek out for herself), so if you read awful, outrageous accusations about Ms. Baggs (usually written anonymously on the Web) it would be well to ignore them.


We should expect to see some major hissy-fits on the part of mercury/biomed/cure-obsessed parents because they don't like that anyone would listen to autistic adults who aren't desperate for a cure for autism.


Amanda Baggs was also mentioned in a recent New Scientist magazine article. The article is pretty dumb (because they didn't consult with Amanda Baggs before they pubished the article...). It's about using computers or robots to teach autistics how to interact with typical people or something.



Another sensible person who tends to make the autism-epidmemic obsessed go into major hissy-fits is Dr. Roy Grinker, author of Unstrange Minds: Remapping the World of Autism. He was recently interviewed on NPR. You can hear his interview here.




Autism Diva
newsy

13 Comments:

Blogger mcewen said...

Missed Grinker [thanks for the link] hot seat for TIVO booked.
Cheers

7:06 PM  
Blogger Dan said...

My feedreader decided not to tell me that you updated the blog until after I missed the show. Do you know if the Anderson Cooper appearance is going to be viewable online?

10:12 PM  
Blogger Autism Diva said...

dan,

Autism Diva knows someone who is going to try to record it off the TV and upload it in some form to the web... we don't know yet if that will be successful yet ... but if that one person doesn't do it, seems like someone is always copying stuff off of TV and putting it on YouTube or some similar place. Autism Diva hasn't seen the piece yet, and doesn't have cable TV.

Other than that... CNN sells videos of their shows somewhere...
here
, on DVD. Which is not something most folks want to do, unless they are teaching a course or something and need the video to be reliable, etc, or maybe if they were a huge fan of Amanda Baggs and could afford to buy a copy.

There's supposed to be some sort of follow up program, apparently, but Autism Diva doesn't know what that is... it might be tomorrow night, that's what one version of the gossip says. The CNN website doesn't mention a follow up, just that Amanda would answer their questions, by email.... Autism Diva assumed that meant that Amanda's answers would be posted, but maybe they'll be read on the air???

10:41 PM  
Blogger Joseph said...

I caught the second part of the segment by chance. I'm not sure how much I missed. It wasn't nearly as negative as it could've been. And sure, they are pretty clueless about autism. I'm not sure it would be realistic to expect more from a TV segment like that.

Dr. Gupta threw some numbers around which were just wrong. I wonder where he got that information.

6:45 AM  
Blogger LIVSPARENTS said...

"Dr. Gupta threw some numbers around which were just wrong. I wonder where he got that information."

Shouldn't they/aren't they required to show source information at the bottom of their graphic or something. Those stats went by so quickly and with such matter-of-fact assurance that I doubt anyone outside of the 'know' would even question them.

Supposedly there is part 2 tonight. Amanda always seems to challenge my perspective every time I think I've solidified them...
Bill

7:24 AM  
Blogger codeman38 said...

Video clips from the segment have been posted on the CNN article page now; look in the left margin.

8:20 AM  
Blogger David N. Andrews MEd (Distinction) said...

"We should expect to see some major hissy-fits on the part of mercury/biomed/cure-obsessed parents because they don't like that anyone would listen to autistic adults who aren't desperate for a cure for autism."

I'd say can rather than should, because we should be able to expect any decent human adult to at least hold back on having a hissy-fit (purely by virtue of alleged socio-emotional maturity); I do think, however, that we can expect some, given that most of them seem unable to hold their hatred for autistics inward.

12:01 PM  
Blogger Autism Diva said...

Thank you codeman!

It seems that the CNN folks got some information from the ASA website, but there may have been other sources. Autism Diva is glad that Amanda Baggs has her blog and is answering questions on the CNN website, too. The CNN piece was off a bit, as we expected.

They said she was "cut off." But if they would have paid attention to what she was saying, much of what "cuts her off" is just stupid stuff like fluorescent lights and people and their making mental demands on her at the wrong time, in the wrong way.

To Autism Diva, it's like when a mom is on the phone with the mechanic and her kids come running up yelling, "Mommy mommy, Bobbie says that Sesame Street is better than Teletubbies! Mommy mommy! Sally hit me. Can I have a cookie?"

Frequently mom will have to make the be quiet to continue the conversation with the mechanic, and frequently the mom will do it in a short tempered way because her circuits got overloaded. At least that's what seems to be the case.

So Ms. Baggs suddenly hit her head, but Gupta and the camera people wouldn't have assumed that they had a part in what led up to that... not that Autism Diva KNOWS why Ms. Baggs hit her head at that point, but it's possible that Gupta et al were pushing her stress buttons and had been for a while.

Gupta seemed to say that Ms. Baggs hitting her had was because she was trapped in a body/brain that didn't obey her or something...

If Ms. Baggs had more control over the whole environment around her at that moment and for days before hand, it's possible that she wouldn't have hit her head.

"Fish out of water" is sort of the image Autism Diva has, autistics are just forced to perform in a world that isn't supportive of them or their neurology, they perform or they don't. Just like some dumb person might take a fish and expect it to breath out of water.

So is the fish out of water disabled, pathetic, and "cut off" from the world if it can't function on dry land?

It's not the best analogy, but it seems close.

Autism Diva can not imagine the stress caused by going to the dentist with a popular news show and camera following along. "Stress" doesn't really seem to cover it.

Autism Diva imagined at one point of the video, Ms. Baggs reaching out and slapping or pinching Sanjay Gupta. If Ms. Baggs had, it would have been understandable. Gupta would have seen it as a symptom of Ms. Baggs being trapped... cut off... probably. Or he would have hit her back, maybe.

Apologies to Ms. Baggs if Autism Diva is describing it all inaccurately.

Cute dog and cat (in the video).

There's supposed to be more tonight because Ms. Baggs' world is so fascinating to everyone.

Thanks, Ms. Baggs for enduring the CNN crew and their invasion of your life!

12:35 PM  
Blogger ballastexistenz said...

The head thing was because I was really stressed out and overloaded (by all of that stuff) and my keyboard had started mispronouncing words. (That's why the keyboard got banged too.)

1:32 PM  
Blogger Autism Diva said...

Thanks Ms. Baggs. :-)

2:04 PM  
Blogger Anne said...

I was struck by how Gupta was kind of leaning in on Amanda, and she was looking away. It seemed like he was almost forcing her to look away. Okay, he's kind of cute, but not *that* cute. Maybe it was so they would both be in the shot.

I liked the interview; Amanda did great, and I think her points came through. I don't like that "world of her own" stuff that's all over the CNN site, though.

3:02 PM  
Blogger Clay said...

"(Edit: There are two videos here, look for the links on the left that say, "Amanda's world, Part 1," and "Part 2") They seem to be the first and second half of what was broadcast on CNN."

Okay, I finally got to see those, (after downloading Media Player 11, which took a loooooong time!). It went pretty well, I thought, but I'm concerned for Amanda's safety, as the building's name and address were shown. I hope her building has the same security measures that my (high-rise) building has. (Cameras all over the place, security guards, and no one gets in without being "buzzed" in.)

11:49 AM  
Blogger ballastexistenz said...

We do have security.

11:30 AM  

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