Mark Blaxill and the Hidden Horde
Mark Blaxill is one of the leading "mercury parents." He's one of the troika who take the lead at "SAFE MINDS." Blaxill is fancied as some kind of self-made epidemiologist. He's a businessman by profession and doesn't appear to have any serious education in the sciences. One sure wouldn't guess he has much of an understanding of science, psychology or history based on the stuff he writes. He accuses the mainstream scientists of producing science that makes the scientists feel more comfortable, and yet, SAFE MINDS' only goal is to support and promote science that tells them what SAFE MINDS want to hear, that is that the parents have good genes, that their personal choices didn't contribute to their kids being autistic, it was those vaccines.
Blaxill knows how to generate Excel graphs that convince people who don't know better that there's been an autism epidemic (see also here.)
One of Blaxill's big contributions to autism epidemic hype is the phrase "hidden horde." Blaxill disagrees with the well supported idea that autism has a "high and stable rate." Blaxill asks the pithy question: if autism has always been here, at the current rate where are all the older autistics? Where's the "hidden horde"?
Without waiting for an answer to come from people who might actually know, Blaxill waves an ivory hand and dismisses the existence of about a million autism spectrum adults. Nice work if you can get it.
Meet Alan.
Alan is the star of the documentary, Without Apology. Alan is presented in this film through his sister, Susan's, eyes. It's a her viewpoint not Alan's, but it's seems to be a much better viewpoint than Mark Blaxill's.
She writes on her website about how Alan was hidden away:
Lots of people like to say that people like Alan shouldn't be born because they are so bad off and burdensome and they need to be sent to institutions,
but at least people like Alan don't do freaky things like go to Harvard and get MBA's, and work to frighten people away from vaccinating their kids.
Click here and here to watch clips of the documentary Without Apology.
These black and white photos of institutionalized children are from the book, Christmas in Purgatory, by Barton and Kaplan (1965.)


The photos were taken in the United States in 1965. You may have to think about 1965 for a minute because the photographs are in black and white and so seem to look more like they were taken in 1945
.
For perspective, the Beatles album HELP came out in 1965. Autism Diva colored a couple of the photographs from Chrismas in Purgatory to make the 1965 date seem more real.


Many of us who follow autism hype in the media hear the devastated, or formerly devastated, parents talk about how a pediatrician told them that they should send their child to an institution. There aren't too many "institutions" for little kids any more in the United States, as far as Autism Diva knows. Unwanted handicapped kids usually go into foster care these days don't they? Is there an children's institutional archipelago out there that Autism Diva doesn't know about? Yes, there are still plenty of mental hospitals. They are mainly, but not entirely, for adults.
There are fewer mental hospitals per capita now than in 1965. Sometime in the 1970's all those mentally ill people were turned into homeless people (those people who sleep under bridges) weren't they? Then there are jails and prisons which function as dysfunctional mental hospitals these days. The largest provider of mental health care in Sacramento County (California), for instance, is the county jail (mental health services are provided there by UC Davis, by the way.) But back to institutions and autism. Putting disabled people into institutions, on the street or in jail is and was a good way to reduce their numbers. They frequently die. See how that works?
Why do people like Mr. Wonder-Bread-and-Butter Blaxill say that they can't remember ever seeing autistic people when they were growing up? Why do they ask where are all the autistic adults now? Here's one answer, Mr. Blaxill, lots of them are dead. They died when they were put out of institutions. Or, they died in the institutions when they were kids or maybe as adults. They died in institutions when they were given anti-psychotic drugs and then they inhaled in their own vomit, they died of other side effects of the drugs. They died of just lousy health-care. But some of them survived and are now living on the street, in jails, or in group homes.
Some autistics born pre-1980 were able to "pass" for normal well enough that no one thought to put them in an institution, or they were born into families that couldn't cope with the idea of giving up their child to an institution. Autism Diva met a man who works for the State of California in public health. He told Autism Diva that his brother is over 60 years old and recently entered the California Dept. of Developmental Services system. The brother is autistic. He has been living with their parents all these years, and recently mom, who seems to be alone now, had to find other arrangements for her autistic son. The DDS (and probably Social Security) will pay for the autistic brother's living and care arrangments now.
There's your hidden horde Mr. Blaxill. For more photos of people who might be part of Blaxill's hidden horde: here, here, here, here, here...
An interesting quote from Christmas in Purgatory.
More unhiding the hidden horde from UPI.
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Reference:
Blatt, B , Kaplan, F (1974) Christmas In Purgatory: A Photographic Essay On Mental Retardation, Disability History Museum, www.disabilitymuseum.org (November 1, 2001).
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Autism Diva
dis-cover
Blaxill knows how to generate Excel graphs that convince people who don't know better that there's been an autism epidemic (see also here.)
One of Blaxill's big contributions to autism epidemic hype is the phrase "hidden horde." Blaxill disagrees with the well supported idea that autism has a "high and stable rate." Blaxill asks the pithy question: if autism has always been here, at the current rate where are all the older autistics? Where's the "hidden horde"?
Without waiting for an answer to come from people who might actually know, Blaxill waves an ivory hand and dismisses the existence of about a million autism spectrum adults. Nice work if you can get it.
Meet Alan.
Alan is the star of the documentary, Without Apology. Alan is presented in this film through his sister, Susan's, eyes. It's a her viewpoint not Alan's, but it's seems to be a much better viewpoint than Mark Blaxill's.She writes on her website about how Alan was hidden away:
Alan became a secret suddenly. In 1958, he was sent to live in Letchworth Village, a state-run institution for people with mental retardation. And after that day, almost all mention of him within the home virtually ceased.In the documentary she says: "My brother had become one of this country's disappeared."
Lots of people like to say that people like Alan shouldn't be born because they are so bad off and burdensome and they need to be sent to institutions,
but at least people like Alan don't do freaky things like go to Harvard and get MBA's, and work to frighten people away from vaccinating their kids.Click here and here to watch clips of the documentary Without Apology.
These black and white photos of institutionalized children are from the book, Christmas in Purgatory, by Barton and Kaplan (1965.)


The photos were taken in the United States in 1965. You may have to think about 1965 for a minute because the photographs are in black and white and so seem to look more like they were taken in 1945
.
For perspective, the Beatles album HELP came out in 1965. Autism Diva colored a couple of the photographs from Chrismas in Purgatory to make the 1965 date seem more real.

Many of us who follow autism hype in the media hear the devastated, or formerly devastated, parents talk about how a pediatrician told them that they should send their child to an institution. There aren't too many "institutions" for little kids any more in the United States, as far as Autism Diva knows. Unwanted handicapped kids usually go into foster care these days don't they? Is there an children's institutional archipelago out there that Autism Diva doesn't know about? Yes, there are still plenty of mental hospitals. They are mainly, but not entirely, for adults.
There are fewer mental hospitals per capita now than in 1965. Sometime in the 1970's all those mentally ill people were turned into homeless people (those people who sleep under bridges) weren't they? Then there are jails and prisons which function as dysfunctional mental hospitals these days. The largest provider of mental health care in Sacramento County (California), for instance, is the county jail (mental health services are provided there by UC Davis, by the way.) But back to institutions and autism. Putting disabled people into institutions, on the street or in jail is and was a good way to reduce their numbers. They frequently die. See how that works?
Why do people like Mr. Wonder-Bread-and-Butter Blaxill say that they can't remember ever seeing autistic people when they were growing up? Why do they ask where are all the autistic adults now? Here's one answer, Mr. Blaxill, lots of them are dead. They died when they were put out of institutions. Or, they died in the institutions when they were kids or maybe as adults. They died in institutions when they were given anti-psychotic drugs and then they inhaled in their own vomit, they died of other side effects of the drugs. They died of just lousy health-care. But some of them survived and are now living on the street, in jails, or in group homes.
Some autistics born pre-1980 were able to "pass" for normal well enough that no one thought to put them in an institution, or they were born into families that couldn't cope with the idea of giving up their child to an institution. Autism Diva met a man who works for the State of California in public health. He told Autism Diva that his brother is over 60 years old and recently entered the California Dept. of Developmental Services system. The brother is autistic. He has been living with their parents all these years, and recently mom, who seems to be alone now, had to find other arrangements for her autistic son. The DDS (and probably Social Security) will pay for the autistic brother's living and care arrangments now.
There's your hidden horde Mr. Blaxill. For more photos of people who might be part of Blaxill's hidden horde: here, here, here, here, here...
An interesting quote from Christmas in Purgatory.
Before we start experimenting it would be wise to find out what occurs in the natural situation. -Seymour B. Sarason
More unhiding the hidden horde from UPI.
---------
Reference:
Blatt, B , Kaplan, F (1974) Christmas In Purgatory: A Photographic Essay On Mental Retardation, Disability History Museum, www.disabilitymuseum.org (November 1, 2001).
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Autism Diva
dis-cover






22 Comments:
You have to find the 75 year olds.
Fore Sam said in his comment:
"You have to find the 75 year olds."
Autism Diva showed you the 75 year olds in this blog entry. American 75 year old autistics! They might have died back in 1966, but they were there in 1965. Alive and kicking caught on film, breathing and everything. Some of them were naked in the video. You really can't miss them. Autistics born in 1930 or before.
Don't tell us you missed them? Check out the video, you DID watch the video didn't you? The 75 year old autistics (if alive today) wave at you and say your name, even. They are the men of your dreams.
Actually, there are a lot of institutions for kids, and they happen in a lot of guises: Group homes, children's psychiatric centers, residential treatment centers, children's hospitals (yes, some of them just keep the children), nursing homes, etc. They're right in your backyard -- no matter where you are -- and you (any you) probably don't notice them for what they are unless you know what to look for. The fact that they are not usually state institutions anymore (although believe me those still exist and still take kids in some places) does not mean they're not still here, and does not always even mean they're any better now. Down that road lies a whole lot of danger, and anyone who does the "Everything's better nowadays" line reminds me of Brave New World or something. That's what people have been saying since 1965 as far as I can tell, and I've watched it even in my lifetime change from "Things have changed since the seventies" to "things have changed since the eighties" to "things have changed since the nineties", all the while watching "things" stay almost entirely the same.
Thank you Ballastexistenz. Autism Diva should have asked you about how many children are in institutions these days. Autism Diva has a friend here in upstate California who's daughter was bipolar probably, anyway, the child's father is mentally and many of the children in the family seem to have mental problems. The girl was "out of control" not going to school, running down the street screaming, trying to committ suicide. The home was very stress filled, the father did not take any meds and was really mean all the time to the mom. The kids were mean to the mom and to each other, from the accounts that Autism Diva heard.
At any rate, the thing Autism Diva knew about at the time this crisis came up (maybe 8 years ago) was that there was no place this family could place that pre-teen girl. If she had been a boy there were homes for emotionally disturbed teen boys, but nothing for this girl in California. If she committed a crime they could put her in juvenile hall. If the family had lots of money they could have put her in different places, one supposes, but they were low-income people.
Your point about things not changing is well taken.
We need to be embarrassed and devastatingly sad about this.
In Susan Schwartzenberg's _Becoming Citizens: Family Life and the Politics of Disability_ (University of Washington Press 2005), one of the family stories includes a man born in 1950, who was given an autism diagnosis in 1953. So he must be 56 now. And Ruth Austin (1892-1918) was born 114 years ago last month. I blogged about here here:
http://disstud.blogspot.com/2005/08/disability-history-image-3.html
BC,
Yes. It's so easy to say, LOOK AT THOSE AWFUL ROMANIANS AND THEIR ORPHANAGES!
Crud. Gulag archipelago, USA.
Makes us all want to hug our autistic kids extra tight doesn't it?
Autism Diva's ex husband's mom and her brother were in one of the State School/Hospitals in the 1940's, the one in Idaho. They don't take little kids there now like they used to.
Penny L. Richards,
Autism Diva saw that blog entry when it was mentioned on the Ballastexistenz blog a couple of months ago?? She was going to add a link to this blog entry at one point and then forgot ....Thank you for the reminder.
here is a hot link to that blog entry. Thank you again for the reminder. It's a fabulous essay about Ruth Austin.
"There are fewer mental hospitals per capita now than in 1965. Sometime in the 1970's all those mentally ill people were turned into homeless people (those people who sleep under bridges) weren't they?"
It's estimated that there are about 700,000 homeless on any given night in the U.S. and upwards of 2,000,000 will experience homelessness annually.
From http://www.nypirg.org/homeless/facts.html
"Approximately 20-25% of the single adult homeless population suffers from some form of severe and persistent mental illness (Koegel, Paul, The Causes of Homelessness, Homelessness in America, 1996, Oryx Press.)"
No desire to discuss "mental illness" other than to point out that this could simply mean diagnosed with something by the DSM criteria.
From http://homelesscount.lahsa.org/pdfs/LAHSA%20Report%20-%20Final%20Version6-4.pdf
"Over 34% of respondents were experiencing mental illness, while 55% of all respondents were experiencing depression."
Although this report is specific to Los Angeles, it contains interesting findings about education, non-use of state services (and reasons), ages groups (mail to female ratio for individuals, etc.).
There could be a hundred thousand or more, autistic adults "hiding" in plain sight in the U.S., but nobody wants to see 'em. This is not to suggest that there are not autistic adults who are doing okay and not homeless, rather to point out that it's possible the educational and services systems of their generations may not have helped many autistic persons avoid such a situation.
"So I would submit my dismissal is not "summary" it is evidence based. And I worry that those who hold onto the theory do so for sentimental and social reasons, not based on evidence."
- Mark Blaxill 2004
I saw a movie from this era on the late show recently, called "A Child is Waiting", one of Judy Garland's later films. It was so depressing. Garland plays a non-medical person working with obviously autistic kids. She gets them to respond through play, but is reprimanded for it. They have to interact the way the doctor says to, not by having fun like regular kids. She eventually gets approval for music therapy. So sad.
Why is Foresam perservating on exactly age 75? Sort like my kid insisting on sandwitches cut in rectangles, not triangles :-).
Ruth said: Why is Foresam perservating on exactly age 75?
Just one of his many perseverations. Because he is convinced that autism was invented in 1931 by Ely Lilly and co., 2006-75=1931.
I noticed that he doesn't ask for examples of autism in China prior to 1990 or whatever year he claims autism was introduced there through thimerosal containing vaccines. An idea, by the way, propagated by Mark Blaxill.
John upthread:
"You have to find the 75 year olds."
John, a few months ago.
"Your 19th century autistics had genetic autism...."
Interesting report:
"In conclusion, there is no question that more information is vital for the surprisingly large population of persons aging with autism..."
And here's one of the few stats on US developmental disabilities in the elderly:
"...It is estimated that four out of every 1,000 older adults have a developmental disability. The total number of elderly persons in the United States who are developmentally disabled is estimated to be as high as one-half million persons. This population is expected to double by 2030...."
I'll also add my usual anecdotal evidence of my two (now deceased) born pre-1920 relatives who were autistic.
"Makes us all want to hug our autistic kids extra tight doesn't it?"
Yes, it does.
To Blaxill's credit, he is pretty good at inventing catch phrases, albeit bogus ones. Didn't he also come up with the "geeks who got lucky" ?
As to Fore Sam's comment, he always has an excuse when that question is answered. Either way, he doesn't realize that's not the way to falsify that hypothesis. Kirby proposed a way to falsify the hypothesis, with a deadline and everything. If Kirby sticks to what he agreed to, at least we can declare the thimerosal hypothesis scientific. You see, the hypothesis is not that autism is caused at current rates by any thimerosal dose. The key claim of the hypothesis is that thimerosal caused an epidemic of autism -- this is the claim that is debated and the claim that started the speculation in the first place.
Joseph said: You see, the hypothesis is not that autism is caused at current rates by any thimerosal dose. The key claim of the hypothesis is that thimerosal caused an epidemic of autism
And, as it has been pointed out many times before, the hypothesis includes the suggestion that a sudden increase in autism was a direct result of increased thimerosal exposure which is in direct conflict with the idea that any level in any vaccine is capable of sustaining said epidemic.
In the UK, kids that cannot be dealt with end up in residential school. This can be because of behaviour, or it can be because of other disabilities (for example, child with physical difficulties that their small rural school could not cope with), but is often because of autism/behaviour issues. There are a number of '52 week residential schools' which are full-time institutions. I know of cases of children who end up full-time in temporary respite homes, because people don't know what to do with them. In general it seems that demand for institutions outstrips supply in the UK.
Kev;
Nice try at skewing the numbers by including all developmental disabilities instead of just autism. I suppose this includes myopia as a developmental disability.
Your relatives would help make your case if you could produce the rest of those 1 in 166 you claim exist by claiming there has been no epidemic. And, of course, you'd want to dig them up to check for genetic abnormalities which don't exist in these normal kids who were poisoned into autism.
"Some autistics born pre-1980 were able to "pass" for normal well enough that no one thought to put them in an institution....." I was one of those.
"Fore Sam said...
Kev;
Nice try at skewing the numbers by including all developmental disabilities instead of just autism. I suppose this includes myopia as a developmental disability.
Your relatives would help make your case if you could produce the rest of those 1 in 166 you claim exist by claiming there has been no epidemic. And, of course, you'd want to dig them up to check for genetic abnormalities which don't exist in these normal kids who were poisoned into autism.
4:14 AM "
Fore Sam,
Autism Diva noticed that you deleted a comment on your blog (hatingautism) that pointed out the TD DMPS is not TD at all, and that's coming from Dr. Quig of DDI labs. Interesting. Are you afraid people will find out how many "chelated and cured" kids were never ever chelated at all?
christsschool,
Yeah. Dan Akroyd would be another one. The autistics who never knew they were autistic and who just made it without being threatened with institutionalization are everywhere around us. The odd and quirky and "shy" and reclusive. One mom on a mercury parent list said that when she was delivering mail for the postal service she met lots of people who didn't seem to leave their houses much (Autism Diva guesses the postal worker needed to knock on their doors sometimes to give them packages or something). The mom was saying that autism was out there among adults at a high rate, but she also thought there were more autistics now because she's been told that by the other merc moms.
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