Autism & Lupron: Playing With Fire
Autism & Lupron: Playing With Fire
The Lupron "Protocol", or Experimenting on Autistic Kids for Fun and Profit.
Please go to Kathleen Seidel's weblog and read about the lupron for autism craze. Oh, such high hopes these parents have. Someone needs to tell them that "homeopathic" water performs miracles on autistic kids with a much lower number of potentially disastrous side effects. Homeopathy is probably a lot cheaper, too.
Note the references in the quotes from the parents to what look like attempts at insurance fraud, diagosing precocious puberty that isn't there. This kind of insurance fraud by manipulation of diagnoses by DAN! and DAN! sympathetic doctors is discussed quite openly on the Internet mercury/antivax/biomed parent boards and groups. Just get your kid a diagnosis of heavy metal poisoning and you get the insurance company to pay for chelation. Get your kid a false diagnosis of herpes infection and get the insurance company to pay for an antiviral like Valtrex, all in the name of experimentation and hype.
It's just amazing that the Geiers can make up an idea like "sheets of testosterone" that somehow lock molecules of mercury in place and people just soak it up as gospel. Probably because the Geiers have reached sainthood because of being "persecuted." Poor Geiers. Do they get a free ticket to harm children now because they falsely claim they were picked on by the government?
Autism Diva
Defeat abusers now!
The Lupron "Protocol", or Experimenting on Autistic Kids for Fun and Profit.
Please go to Kathleen Seidel's weblog and read about the lupron for autism craze. Oh, such high hopes these parents have. Someone needs to tell them that "homeopathic" water performs miracles on autistic kids with a much lower number of potentially disastrous side effects. Homeopathy is probably a lot cheaper, too.
Note the references in the quotes from the parents to what look like attempts at insurance fraud, diagosing precocious puberty that isn't there. This kind of insurance fraud by manipulation of diagnoses by DAN! and DAN! sympathetic doctors is discussed quite openly on the Internet mercury/antivax/biomed parent boards and groups. Just get your kid a diagnosis of heavy metal poisoning and you get the insurance company to pay for chelation. Get your kid a false diagnosis of herpes infection and get the insurance company to pay for an antiviral like Valtrex, all in the name of experimentation and hype.
It's just amazing that the Geiers can make up an idea like "sheets of testosterone" that somehow lock molecules of mercury in place and people just soak it up as gospel. Probably because the Geiers have reached sainthood because of being "persecuted." Poor Geiers. Do they get a free ticket to harm children now because they falsely claim they were picked on by the government?
Autism Diva
Defeat abusers now!
posted by Autism Diva at 2:43 PM
13 Comments:
Hmmm...
Homeopathy or Lupron???
Homeopathy or Lupron?????
This is quite the conundrum.
How..about....neither?
-John
(Signatory)Defeat Abuse Now!
With all due respect to Interverbal, there is a big difference between Lupron and Homeopathy.
Homeopathy cannot kill you if you are healthy. Lupron can.
'Nuff said?
Of course, homeopathy can kill you - or maim you - if you take it instead of real medicine for a real illness.
Prometheus
Prometheus,
I was in a hurry when I wrote that, I didn't review how it came out. Sorry for the carelessness folks.
I have no delusions that Lupron and Homeopathy are in the same category in terms danger.
Mea culpa...
AD,
I apologize for being redundant with comments (NM and I just commented about this at his blog too).
But, it is really remarkable that those Geiers are such busy guise.
They were involved with the Bradstreet/Jim Adams study that the current cheatlation study in AZ is based on too.
:)
Interverbal,
No need for the mea culpa - I just wanted to point out the irony of "alternative" medicine practitioners and DAN! doctors - who have so often berated others for prescribing "powerful", "dangerous" and "synthetic" drugs to children with autism now promoting the use of a "powerful, dangerous and synthetic" drug.
Somewhere along the way, a line was crossed, and I don't think that the autism-mercury crowd has noticed it yet. They've moved from "therapies" that are likely to be useless but are generally harmless, to therapies that are likely to be useless but are potentially very dangerous or even lethal.
Interverbal - I apologize for making it sound as though I were taking a "shot" at you. I intended nothing of the sort.
I was taking a "shot" at the hypocrisy of those who castigate others for exposing their children to "dangerous" drugs while giving their own children (or their patients - which is somehow even worse) drugs that are much more dangerous.
Prometheus
Regarding the Geiers...The more I read and hear about them, the more dangerous they appear to be. It seems that they will push any idea or thing that can generate an income for them without the slightest evidence to support it.
The make Wakefield look honest.
About 25 years ago I read a novel that purported to be the memoirs of the first female American pro hockey player. One of the side-plots involved a friend of hers who had to retire from the sport due to a rare neurological disorder (basically a tic disorder) called "Jumping Frenchmen." At one point she and the friend attend a support group for the condition (the group consisting mainly of parents) where some people are making presentations about advances in treatment (there's no known cure at the point). She observes that the more extreme the proposed treatments (one involved freezing brain cells), the more enthusiastic the members were about them. She said something to the effect that hearing about a treatment involving brain freezing made them feel important in a way that hearing about a treatment involving Vitamin C wouldn't.
Could it be that we've got a case of "vicarious sick role" here? I'm not talking about Munchausen's by proxy (although stuff like IV pushes of disodium EDTA, contrary to the black-box warning, makes me wonder sometimes). But a lot of the "biomed" parents do act as if the "sick role" gives them a purpose in life. I think there's also a little "pride in persecution" here; you must be a formidable enemy if Big Pharma is against you.
eobohlman,
I can see that you are cautious about the Munchausen's by proxy label, and that is good, but really one has to wonder about some of these parents. Maybe only a small percentage. like less than 1% of the ones who are "into" biomed/altmed. The fact that quacks need to keep their levels of charm and concern up would be even more attractive to those susceptible to getting hooked on that kind of attention, thus giving them reason to keep taking the kid back to the doctor. The fact that these treatments are so illogical and defended so radically and even with verbal violence, (think JB Handley) makes one wonder about mental illness.
There's a feeling that they have that seems to come from the belief that all mainstream medicine is evil and allied with "big pharma" and that is that one is good and smart if one goes to an "alternative" doctor or just avoids all doctors and does it at home with herbs and vitamins.
There's also the situation set up by the Internet where an average mom or dad can become "Joan of Arc" or "Sir Gallahad." They receive massive amounts of praise from the acolytes.
You can see that with Teresa Binstock, not a parent but a woman with Asperger's (apparently) who is their pet "scientist", sort of. Binstock's ideas can be very bizarre (she's published in Medical Hypotheses) and she's quite angry at "big pharma" and quite into exposing polluters and pollution (not a bad idea), but she's totally bought the whole set of alt med and antivax lies, so you can see she's not very scientific. She has a Bachelors in something, but when mistakenly called "Dr. Binstock," at least once, didn't correct that error. She's written up as a heroine in "Evidence of Harm." Hard to say if she's been chelating herself to get rid of her Asperger's traits.
Andy Cutler is treated like a god on "autism-mercury" Yahoo! group (see onibasu.com), and people seek his advice as if he were an MD, he's not the only one like that, either. Stan Kurtz is a good one for giving lots of advice about the prescription Valtrex online, people seek him out and ask for his free (kindly) advice. Dr. Neubrander's not-doctor-brother is an "expert," or seems to be on the Internet.
That kind of admiration they get is addictive, and it can go to regular old parents who say, "I tried, this and this, and I've read this and that, I recommend that you try this product at this dosage." Suddenly they are experts and gurus.
Even David Kirby got called "Dr. Kirby" by whatsername, Huffington on Huffingtonpost blog.
You can see Lenny Schafer cast in the role of beloved hero as he goes to Washington DC to lobby for whatever regarding thimerosal. That's pretty cool for someone who otherwise would just be the (retired?) adopted dad of a handicapped young man.
Yeah, social psychologists would loooove this bunch, they are textbook in many ways.
Hi, Interverbal:
I took what you wrote as ...
Milk-sugar-water OR Castration??
and I kinda really laughed.
It sort of puts things into an interesting perspective and also shows the gamut of "remedies" included in certain "protocols" -- Eg. as Prom discusses -- from 'relatively' harmless to wildly extreme.
Hi HJ,
That is kind of, sort of, what I was going for. (grins)
Prometheus,
We are cool.
I knew you weren't taking a shot at me.
I was kicking myself for sounding foolish though.
Oh well, it could be worse....
Hey, Interverbal: Don't kick yourself. You actually made my day. I hardly EVER get jokes. In fact, someone around these blogs has been known to break jokes down for me in excruciatingly (probably?!) minute detail, so that I can "get them". And ya know what, it's not true that once a joke is explained it ceases to be funny ... because everytime one is explained to me, I do laugh (if it's funny that is).
I'm reminded of that "History of Comedy" sketch of Monty Python's. I really liked the "deposits." Especially the unexpected "lower deposit."
As a man with Asperger's, I'm very much for chemical castration of males with Asperger's rather than social skills training and therapy. It's actually some sick irony that it's politically correct to promote sexualt harrassment of women. I can't personally believe that there are actually women who believe that men with Asperger's should be taught social skills so that they too can achieve the courage to sexually harass women.
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